| | Cure4Lupus Recent Comments Sunday, November 1, 2009 5:08 PM View our October 2009 Newsletter: http://cure4lupus.org/newsletters/newsletter1009.htmTopics include: Vaccines & Lupus, A Better Doctor's Visit, Lupus Fundraisers, Cure4Lupus.org Moved, WeAreLupus.org, ButYouDontLookSick.com, Lupus Research News, What's Hot, Featured Product: 2009 Lupus Awareness Ornament, New and Updated pages. Subscribe to the newsletter here: http://cure4lupus.org/phplist/?p=subscribe&;id=6 Wednesday, August 19, 2009 8:51 PM Read our August newsletter: http://cure4lupus.org/newsletters/newsletter809.htmTopics Include: Des Moines, IA Fundraiser, Vitamin D & Lupus, Donate to Our Walk Team, BenLysta, Featured Profile, Featured Lupus Website, Lupus Research News, What's Hot, Featured Product, New and Updated Pages Sign-up to get our newsletter by email: http://cure4lupus.org/phplist/?p=subscribe&;id=6 Friday, July 24, 2009 8:26 PM This was a great week for Lupus research. Human Genome Sciences, Inc. and GlaxoSmithKline PLC announced that BENLYSTA™ (belimumab, formerly LymphoStat-B®) met the primary endpoint in a 52 week study. This is the first of two pivotal Phase 3 trials in patients with Systemic Lupus Erythematosus. This was a placebo-controlled study in which BENLYSTA™ showed significant improvement of disease activity when compared to placebo with adverse reaction rates comparable to placebo. The patients taking BENLYSTA™ were also able to reduce their steroid need. BENLYSTA™ works by inhibiting BLyS. BLyS is a protein required for B-lymphocytes to mature into plasma B cells. Plasma B cells are white blood cells that produce antibodies and in Lupus they produce autoantibodies that attack the body's own tissues. People with Lupus often have elevated BLyS levels. The results of the second, longer trial will be announced this fall. If this trial is also successful and BENLYSTA™ gets FDA approval it will be the first new treatment for Lupus in over 50 years and the very first drug developed specifically for Lupus since it's discovery over a century ago. While a big step in the treatment of Lupus, this is only the beginning. This is not a cure for Lupus. Lupus is a complex, individualized disease that requires complex, individualized treatments. Much more research and more treatments are needed. BENLYSTA™'s success shows that there is hope and will hopefully help get some momentum going that will eventually lead to a cure! Monday, July 20, 2009 8:04 PM Read our July Newsletter: http://cure4lupus.org/newsletters/newsletter709.htmTopics Include: Pampered Chef, Lupus in the Media, Donate to Our Walk Team, Product Changes, Orange Ribbons, HuHot, Lupus Research News, Stem Cell Research News, New & Updated Pages Receive our Newsletter by email: http://cure4lupus.org/phplist/?p=subscribe&;id=5 Friday, July 10, 2009 4:51 PM From July 10-31 you can support Lupus awareness and research by purchasing products from The Pampered Chef. All of our hosting gifts and a portion of every sale made by purchasing from our fundraising page: http://www.pamperedchef.biz/camerongowdy?page=host-search-results&;showId=2146135 will be donated to Lupus awareness and research. Tuesday, March 10, 2009 5:52 PM http://cure4lupus.org/newsletters/newsletter309.htm Topics include: Lupus Events & Support Groups, Dancing at the River's Edge, Lupus & Stem Cells, Link to Us, WeAre Lupus.org, FaceBook Group, Lupus Research News, Stem Cell Research News, New & Updated Pages. Receive our newsletter by email: http://cure4lupus.org/phplist/?p=subscribe&;id=5 Monday, October 27, 2008 9:54 PM Check out our October Newsletter at: http://cure4lupus.org/newsletters/newsletter1008.htmFeatures Include: Get Out the Vote Fundraiser for Lupus Groups 2008 Ornaments REACH Amendments Lupus Research News Stem Cell Research News New & Updated Pages Friday, August 15, 2008 4:50 PM Although I am not physically able to walk in the second annual Iowa Walk for Lupus Now, I am still very passionate about the mission of the Lupus Foundation of America, so I am participating as a virtual walker and committee member. This organization works to fund Lupus research, support Lupus patients, and raise Lupus awareness. This year’s walk will take place on September 13th at Gray's Lake in Des Moines, IA. I would like to invite you to help support us in fighting Lupus by sponsoring me with a donation. Click the link below to visit my page: https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=272038&;lis=0&kntae272038=FA91F2962504479BB04BBD0F4718C712&supId=185223504 Kendra Isola webmaster@cure4lupus.org Wednesday, April 23, 2008 1:54 AM One of the most common questions we receive is inquiring whether it is "ok" for people with Lupus to get a tattoo. The Lupus Foundation of America has this to say about the subject: "There are no specific problems that have been associated with tattoos in lupus patients. Keep in mind the small risk of infection with hepatitis B and C. Occasionally lupus patients have been known to have a reaction to the tattoo dye but this is very rare. Remember, if you are on immunosuppressive medication, this may increase the chances of infection and slow healing of the tattoo area. As with other procedures, it is best done when you are in remission or a welled controlled mild disease state. Consult with your physician prior to getting your tattoo." Also, if you are on blood thinners you may not be able to sit for long sessions. The longer someone is being tattooed, the more the skin is irritated and the more they bleed, pushing the pigment back out in spots. This does not apply to small tattoos (under 1 hour) or to black and gray tattoos. Kendra has thought about getting a tattoo for many years but was afraid of the pain and healing time. For her 30th birthday in January 2008 she decided to go for it. She wanted to get a tattoo that represented her passion and work for the Lupus Awareness Cause so she chose a purple butterfly carrying a purple ribbon. To add dimension a second color was added to the butterfly. A blueish teal was chosen in honor of Kendra's sister who has Scleroderma. Kendra having Lupus and Fibromyalgia was nervous about the pain, however found the entire process to be only slightly painful, perhaps comparable to a shallow sting. Kendra is also on immunosuppressives and was very diligent about aftercare. The tattoo healed up perfectly with no infection or complication within 1 week. Since getting the tattoo, we have gotten several compliments and even a few very flattering copies. Email us pictures of your Lupus tattoo to webmaster@cure4lupus.org. View Kendra's tattoo here: http://cure4lupus.org/information/lupus_&;_tattoos.htm Saturday, November 10, 2007 2:41 AM Read our latest newsletter here: http://cure4lupus.org/newsletters/newsletter1107.htmTopics Include: Holiday Lupus Ornaments Media Campaign Update Our Political Efforts New and Upated Pages Products for a Cure Lupus Reasearch News Stem Cell Research News Thursday, October 11, 2007 6:56 AM We are down to less than 48 hours left before our Lupus Walk and things are getting very exciting! Please help us reach our fundraising goal by making a donation today. Even if you can only give a dollar or two, every little bit helps! Almost all of the money will be going to Lupus research. The rest will go to educate Lupus patients and to raise awareness. Below is the link to donate: http://lupusia.walk.kintera.org/faf/search/searchTeamPart.asp?ievent=243852&;lis=0&kntae243852=F248E62E72A94964AAE8FB9E933052CF&team=2043187 Friday, August 10, 2007 2:56 AM We are participating in the first annual Iowa Walk for Lupus Now because our family & countless other families have been deeply affected by Lupus. Please support us in raising money to support the Lupus Foundation of America, Iowa Chapter. Their mission is to improve the diagnosis & treatment of Lupus, support those affected by the disease, increase awareness among health professionals & the public, & find the cause & a cure. We are asking all of our supporters to support us with a donation to sponsor us or you can even join our team and walk virtually! To make a donation to our team you can Visit our Team Page and click on General Team Donation at the top. To Join our Team and Help us Raise Money for Lupus awareness, and research, Visit our Team Page and click on Join our Team at the top. Our Team page is located at: http://lupusia.walk.kintera.org/faf/search/searchTeamPart.asp?ievent=243852&;lis=1&kntae243852=B3194AAB268A43BE944B0B9B56BEFB2D&team=2043187 Kendra Isola Cure4Lupus.org Webmaster Webmaster@Cure4Lupus.org Wednesday, June 20, 2007 7:27 PM This week's Media Campaign pick was Newsweek Magazine Lupus Poetry & Humor - Finding Lesa…, A Little Peace of Mind. Lupus in the News - Buy the July issue of Ebony Magazine to show your support for the article on pg. 142 titled "Living with Lupus" Lupus Products - New: Survivor Photo Frame, Foam Butterfly Photo Frame, Lupus Awareness Jr. Tank Tops:15 designs, Photo Holder, Lupus Awareness Mousepads:14 designs, Lupus Awareness Office Decor, Cure Lupus Canister. Updated: Checkbook Cover, Credit Card Holder. Also, we are doing more EBay auctions. Lupus Research News: http://cure4lupus.org/news/07/news_061707.htm Stem Cell Research News: http://cure4lupus.org/news/sc07/scnews_061807.htmhttp://cure4lupus.org/news/sc07/scnews_061507.htmhttp://cure4lupus.org/news/sc07/scnews_061407_4.htmhttp://cure4lupus.org/news/sc07/scnews_061407_3.htmhttp://cure4lupus.org/news/sc07/scnews_061407_2.htmhttp://cure4lupus.org/news/sc07/scnews_061407.htmhttp://cure4lupus.org/news/sc07/scnews_061207_2.htmhttp://cure4lupus.org/news/sc07/scnews_061207.htm Wednesday, June 13, 2007 11:42 PM | | |
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